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What’s happening in NF1 research today
Two New Clinician-Scientists Chosen for Neurofibromatosis Award, Research Support
Author: Cathy Gara. July 2018–The Neurofibromatosis Therapeutic Acceleration Program (NTAP) at the Johns Hopkins University School of Medicine is proud to announce that Dr. Shruti Garg, of the University of Manchester, and Dr. Ina Ly, […]
Read MoreFunding Available for Neurofibromatosis Research from the Department of Defense – Congressionally Directed Medical Research Programs
The FY18 Neurofibromatosis Research Program (NFRP) is accepting applications for research projects. Applications to the Fiscal Year 2018 (FY18) Neurofibromatosis Research Program (NFRP) are being solicited for the Defense Health Agency (DHA) J9, Research and Development […]
Read MoreCutaneous Neurofibromas Initiative Outlines Current Biology and Path Forward for Clinicians and Scientists
July 10, 2018: One of the hallmarks of the complex syndrome Neurofibromatosis type 1 (NF1) are cutaneous neurofibromas (cNF). cNF are tumors involving the skin that affect up to 99 percent of adults with NF1. […]
Read MoreNew Research Tools Available in the Search for Therapies for Neurofibromatosis Type 1 Plexiform Neurofibromas
New Research Tools Available in the Search for Therapies for Neurofibromatosis Type 1 Plexiform Neurofibromas By Cathy Gara | For Release: June 15, 2018 Plexiform neurofibromas affect up to 50 percent of people with neurofibromatosis […]
Read MoreNTAP announces Dr. Angela Hirbe (Washington University) and Dr. Ping Chi (Memorial Sloan Kettering Cancer Center) have been selected as the 2017 recipients of the Francis S. Collins Scholars Award in Neurofibromatosis Clinical and Translational Research
The Neurofibromatosis Therapeutic Acceleration Program (NTAP) at The Johns Hopkins School of Medicine is proud to announce that Dr. Angela Hirbe (Washington University) and Dr. Ping Chi (Memorial Sloan Kettering Cancer Center) have been selected […]
Read MoreCutaneous Neurofibroma Initiative Projects (2018)
9 Projects Transforming the Field of NF1 Research NTAP convenes symposiums on a regular basis to determine research priorities, define new avenues of inquiry and develop requests for applications (RFAs) in neurofibromatosis type-1 (NF1) research […]
Read MoreNTAP 2018 Cutaneous Neurofibroma Initiative: 4 Supplement Paper summaries
As a result of the 2018 Cutaneous Neurofibroma Initiative, several working groups were formed to produce papers addressing key challenges identified. Those papers are summarized below with links to the full papers provided. This information […]
Read MoreNTAP and CTF supported early-phase trial demonstrates shrinkage in pediatric neural tumors
Bethesda, MD (December 28, 2016) NCI Press Release: In an early-phase clinical trial of a new oral drug, selumetinib, children with the common genetic disorder neurofibromatosis type 1 (NF1) and plexiform neurofibromas, tumors of the […]
Read MoreNTAP Announces latest Francis S. Collins Scholar, Dr. Ashley Cannon
Baltimore, MD (January 3, 2017) Ashley Cannon, Ph.D., M.S., has been named the 2016 winner of the Francis S. Collins Scholars Program in Neurofibromatosis Clinical and Translational Research, sponsored by the Neurofibromatosis Therapeutic Acceleration Program […]
Read MoreNTAP 2016 Cutaneous Neurofibroma Symposium
Establishing priorities and advancing the field of NF1 research Introduction to NTAP symposiaNTAP convenes leading researchers and innovators from across multiple fields and scientific backgrounds in regular symposia to establish priorities for the future NF1-related […]
Read MoreNTAP Selected as Innovator Presenter for Partnering for Cures Meeting
Baltimore, MD (October 1, 2014) Neurofibromatosis Therapeutic Acceleration Program (NTAP) today announced that they have been selected as an Innovator Presenter at the 6th Annual Partnering for Cures meeting to be held in New York, […]
Read MoreJohns Hopkins Announces Winners of Francis S. Collins Scholar Award
Baltimore, MD (June 9, 2014) Two early career physician-scientists, Peter de Blank and Matthew R. Steensma, have been named inaugural winners of the Francis S. Collins Scholars Program in Neurofibromatosis Clinical and Translational Research, sponsored […]
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