NTAP’s innovative funding approach was featured in an article,”Pedal to the Metal” on Inside Hopkins, the Johns Hopkins Medicine daily publication highlighting exceptional and impactful programs.
“How an innovative funding approach is advancing research and speeding treatments for patients whose complicated disorder can cause tumors on nerves all over the body. Every grant made by the Neurofibromatosis Therapeutic Acceleration Program, says neuro-oncologist Jaishri Blakeley, is bestowed with one question in mind: ‘How will this treatment get to clinic?’
Tamika and Laticia Robinson are as close as twins could possibly be. They have lived together for most of their 52 years, they tease and bicker and finish one another’s sentences, they feel one another’s joy and pain. And being identical twins, they of course share their unique genetic makeup — including a genetic disorder known as neurofibromatosis type 1, or NF1.
What the twins don’t share are some of the worst manifestations of this relatively rare but extremely complicated disorder that can cause a host of symptoms, including a variety of tumors that grow on nerve tissue throughout the body.” Read the rest of the article.