NTAP LeadershipThe leadership of NTAP is responsible for identifying new research ideas and opportunities for collaboration, overseeing the research portfolio supported by NTAP to ensure it is serving NTAP’s mission and recruiting scientists and thinkers from academia, industry, foundation and government research establishments.
Jaishri Blakeley is a Professor of Neurology, Neurosurgery and Oncology at the Johns Hopkins University School of Medicine and the Director of the Johns Hopkins Comprehensive Neurofibromatosis Center. She is an expert in clinical trial design and the development of translational studies to advance new therapies in rare neuro-oncologic diseases.
Senior Research Program Officer
Sang Y. Lee is a Senior Research Program Officer for the Neurofibromatosis Therapeutic Acceleration Program (NTAP) at the Johns Hopkins University School of Medicine. He is an experienced biomedical scientist and officer with diverse research background and keen knowledge of preclinical cancer drug development and the role of iron mismanagement in human disease with over 20 years of experience in academic and government research institutes. At present, he is interested in generating new grant initiatives, overseeing new and funded projects, and data monitoring and data analysis for uploaded neurofibromas data.
Carlos Romo is an Assistant Professor of Neurology, Oncology and Medicine at the Johns Hopkins University School of Medicine, an attending physician in the Johns Hopkins Comprehensive Neurofibromatosis Center, and the Director of Clinical Research of the Neurofibromatosis Therapeutic Acceleration Program. His research interests include early phase clinical trials for the treatment of neurofibromatosis and gliomas.
Verena Staedtke is Associate Professor of Neurology at the Johns Hopkins University School of Medicine and the Director of Pediatric NF at the Johns Hopkins Comprehensive Neurofibromatosis Center. She is an expert in the clinical care of children and young adults with neurofibromatosis and other related neuro-oncological conditions. Her research is focused on developing novel treatments for these conditions, with a particular focus on gene and cell-based therapies.
Jacquelyn Eubanks-Rudd is a certified public accountant with a certified global management accountant designation and a master’s degree in information systems. She has been a financial manager for over 30 years and for 15 of those years served as director of finance and administration at two institutions of higher learning. Her area of expertise is with institutions of higher learning and medical foundations. She has been the finance manager at the Neurofibromatosis Acceleration Program (NTAP) at Johns Hopkins since January 2018
Rhonda Jackson is Program Manager for the Neurofibromatosis Therapeutic Acceleration Program at the Johns Hopkins University School of Medicine, Department of Neurology. She has over 20+ years of experience in administration and editorial management between Johns Hopkins University School of Public Health and School of Medicine and University of Maryland School of Medicine. She received her Associates in Healthcare Administration and Bachelor’s in Business Management. Her interests include research administration and editorial management.
Joshua M. Roberts is the Clinical Research Program Administrator for the Neurofibromatosis Therapeutic Acceleration Program (NTAP) at the Johns Hopkins University School of Medicine. He has a degree in cognitive neuroscience and has applied this knowledge to overseeing complex multi-disciplinary research operations across numerous fields of study. With expertise in scientific writing, regulatory administration, database management, various neuroimaging modalities, and study coordination, he oversees clinical research projects examining effective treatments for people with Neurofibromatosis Type 1.
Christina Allen, CRNP, DNP is a board-certified family nurse practitioner at the Johns Hopkins Comprehensive Neurofibromatosis Center. She divides her time between providing clinical care for pediatric patients in the Neurofibromatosis Center with Dr. Staedtke and serving as the clinical nurse for research studies through the Johns Hopkins Comprehensive Neurofibromatosis Center and the Neurofibromatosis Therapeutic Acceleration Program.
She brings over 12 years of nursing experience, and a bulk of clinical knowledge. She truly enjoys caring for patients across the lifespan and has a keen interest in clinical research and therapeutic options for patients with Neurofibromatosis.
External Advisory Committee
Dr. Hirbe is currently an Assistant Professor of Medicine and Pediatrics in the Division of Medical Oncology in the Department of Medicine, and Director of the Adult Clinical Neurofibromatosis Program at Washington University in St. Louis. Clinically, she cares for patients with bone and soft tissue sarcomas, other rare tumors, and patients with cancer predisposition syndromes including Neurofibromatosis Type 1, Li Fraumeni, and Retinoblastoma. Her laboratory is focused on genomics and mouse models of soft tissue sarcomas, particularly MPNST, with the goal of identifying drivers that can be exploited as diagnostic biomarkers or therapeutic targets.
Dr. Lu Le, MD, PhD is a Dermatologist with an interest in Neurofibromatosis. He received his Ph.D. degree in Immunology and Molecular Genetics, and a medical degree (M.D.) from the Medical Scientist Training Program at the University of California, Los Angeles. He completed an Internship in Internal Medicine at UCLA/St. Mary Medical Center, residency training in Dermatology and a postdoctoral fellowship in Cancer Biology from University of Texas Southwestern Medical Center. He is board certified by the American Board of Dermatology. Dr. Le sees patients in the Dermatology clinic and at the UTSW Comprehensive Neurofibromatosis clinic. As a principal investigator in cancer biology, Dr. Le’s laboratory investigates how initiating genetic and tumor microenvironmental events interplay to regulate NF1-associated tumorigenesis. A major contribution of Dr. Le’s laboratory is the generation and exploitation of novel Neurofibromatosis models to decipher mechanisms that initiate Neurofibroma development and drive their malignant transformation. His laboratory has identified the cells of origin for different types of Neurofibroma, defined developmental “window-of-opportunity” within Schwann cell lineage for Neurofibroma development and delineated vital cancer pathways for its malignant transformation. These studies have addressed fundamental, unanswered questions in the Neurofibromatosis field and could lead directly to potentially effective therapies for NF1 patients, where none exist today.
June Lee is a physician-scientist with over 20 years in the biotechnology and pharmaceuticalindustry. Most recently, she was Founder and CEO of Esker Therapeutics. She previouslyserved as Executive Vice President, Chief Development Officer and Chief Operating Officer ofMyoKardia where she built and led a world-class development organization that was acquiredby Bristol Myers Squibb for $13.1 billion in November 2020. Prior to MyoKardia, Dr. Lee wasProfessor of Medicine at UCSF School of Medicine, where she served as Director ofTranslational Research and built the Catalyst Program, an internal accelerator for early-stagetechnologies. As the therapeutic area head at Genentech, Dr. Lee led early clinical developmentprograms in cardiovascular and metabolic diseases, infectious diseases, and respiratorydiseases. Dr. Lee serves on numerous boards in the healthcare industry including the AdvisoryBoard for Johns Hopkins University Center for Therapeutic Translation, the Board of Directorsfor Tanaya Therapeutics, Eledon Pharmaceuticals Inc. and GenEdit, and is a member of theScientific Advisory Board for Foresite Labs. Dr. Lee received her undergraduate degree inchemistry at the Johns Hopkins University, earned her medical degree at the School ofMedicine at University of California, Davis, and completed her clinical training in internalmedicine and pulmonary & critical care at UCLA and UCSF.
Marjorie B. Tiven has devoted her professional and philanthropic work to cultural diplomacy, education, and public service. She is the founder and president of Global Cities, Inc., a program of Bloomberg Philanthropies. Through her signature program, Global Scholars, Tiven works with a worldwide network of cities committed to developing global competency among the next generation of students through international digital exchange. Tiven’s program focuses students on issues of public health, environmental stewardship, and a sustainable future—and grounds them in the scientific mindset they will be able to draw on as adults in tackling the world’s problems. This global education program has grown over the last five years from 2,000 students to over 13,000 students in 64 cities in 29 countries. Tiven’s global scholars inspire her to collaborate in every way possible to solve the world’s problems. It is in that spirit that she is thrilled to support the work of her daughter Rachel Tiven and Sally Gottesman in their efforts to hasten a cure for neurofibromatosis, introducing them to Jaishri Blakeley, MD at Johns Hopkins Medicine.